My brother has a degnerative and progressive disease in which there is no cure – but he is a fighter and as a family we are staying strong and are going to help him fight this. My brother actually has his own website www.photraxia.com. Feel free to check it out xxx
hi my lovelies happy Friday I'm really somebody I didn't get a video out this week I have had a lot on the cuz my last video was with the flipchart talking about personality disorders and I was requested from Alexander hi Alexander to discuss antisocial personality disorder and compare it to borderline and that kind of set off my thinking and I thought talk about all of them but now I'm going to do two like antisocial personality disorder verse borderline and then history on EcoSport align and narcissistic versus borderline so I'm going to compare the cluster B's basically if any of you do want me to do the cluster A's first borderline of the cluster C's verse borderline let me know but for now I'm gonna stick the bees but like I said I have had a lot on I am briefly going to just tell you a little bit about what's been going on because I've never mentioned it before I did a video with my little baby brother and I call him my little baby brother but he is not a baby he's only two years younger than me his name is Cole and I went on holiday with him when I went away with the family in the summer and my brother was there and we did a video together that we were going to put out but we realized actually we went really off topic and we decided against doing it and I asked him when I was down the other week would he liked it to another video and he said no because his speech has got worse and so I will explain what's been going on because like I said I've kind of never mentioned it basically my brother Cole has we will always been very very close because my mum raised us because obviously my dad lived in Ireland and and my brother took the divorce very badly with my mum and dad he used to cry every night me and my brother used to have beds next to each other we'd have stories together we did everything when we went to Ireland to see my dad we always went together so we grew up really really close in my teenage years I was horrible to my little brother really because you are with borderline you horrid to those closest to you and he used to take a lot of my ships basically which he which was really unfair he should have had to deal with that but we are close again now and I love my little brother dearly daily daily and he has traveled the world he worked on cruise ships he taught English in China he worked in Euro Disney he is a photographer so he's done so many things he's literally traveled the world and we noticed a few years ago that he started walking funny and I used to actually laugh about it and say you look like you're drunk because he'd just be stumbling and I thought he was like he just looked like he's drunk it isn't like my brother cuz my brother does not touch alcohol and my brother has never touched drugs he was always the really healthy one and he was always the really good sweet sweet on as well whereas I was kind of Nightmare trialed and so his walking starts going badly and eventually he kind of went to the doctor he got referred to somewhere in Charing Cross in London and he got diagnosed with something called spinocerebellar ataxia and basically it is supposed to be genetic they say spinocerebellar Beit them basically they've tested all the genes that they can they've not found anything this has never been in any of my family before no one's ever shown signs of this so we don't know I still think there's a lot of unanswered questions and he actually he had an important meeting on Monday night so this weekend I'm going to be just researching Rhys so I could give my mum loads of information to ask the doctor basically what's happening we have the cerebellum at the back of the back of our brain I think it's attached to the spinal cord and the celebrat Belem is what is responsible for our motor skills movement coordination and spinocerebellar is a progressive disease meaning it gets worse over time and there is no cure yet I'm praying that they find one so basically his cerebellum at the back of his brain is disintegrating is disappearing it's breaking down and so the first thing like I said we noticed he was walking like he was drunk and and it slowly got worse and worse and I noticed when we were away in the summer like I was wherever he walked I'd let him hold my arm which we never used to have to do but it's to the point now he is struggling to put one step forward he often Falls his speech and he sounds like he is drunk slurred speech and from my research actually there's a lot people that say who have spina cerebellar that have been stopped by security in like shopping mall or something and said you have to leave and because you're drunk and they're not they have this disease and it the signs look like they're drunk they're slurring their words they are walking like they're drunk but they're not and luckily my brother hasn't had that yet I think if he had that really upset me and the upset would turned to anger that people don't understand but so many people don't I'd never heard of this illness before and so yeah his speech it can affect swallowing food like I said there is no cure but we are really fortunate that my brother's like he is so strong because I don't know if I could cope as well if it if it was me he is so strong he is staying so positive and he's like I'm going to fight this I am going to fight this and he's just got the best attitude and I really admire him for that and I feel so proud to have him as my brother and parts of me sometimes think oh my god is so unfair what's he done to deserve this but you know I can't look at it like this because then it's like I'm always feeling sorry for myself and and he doesn't want me to feel sorry for him because he's okay and he is strong and he believes he can fight this and so at the moment we're just looking into everything that we can do to make life better life easier things that can help him like there's certain supplements and exercise is key and instead of just him saying yeah that's it there is no cure I'm giving up he's not he is doing everything he can and yeah I am so proud of him I think it's hard on my mom because no one wants to see their child going through anything really especially thinking oh my god they've got this disease it's progressive and there's no cure but like we are a strong family unit and we can all talk to each other and we're not giving up we are focusing on right what can we do what can we do we've got to fight this and we're just gonna fight it fight it all the way and I wanted to do a quick video on this I've been wanting to do it for ages I don't know why I haven't I really wanted my brother in it and like I said we did a video in this summer and he didn't put it out and now he doesn't want you because his speech has deteriorated and so he doesn't I mean I am going to try I will keep falling at him because I would love my little brother in the video but it has to be his choice if he wants to do it or not and at the moment he just doesn't and that's fine that's fine that is his choice so yeah like behind the scenes this is kinda what's going on and I have been spending a lot of time doing research on this because we want to do whatever we can to help my brother so I'm actually going to leave this video here and yeah I will possibly title it as spinocerebellar ataxia and you're probably thinking what's that and now you know and I'm going to try and get my videos out on personality disorder so I'm going to do a few of those today but I believe this love you all guys hey
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